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Zinsser-Engman-Cole syndrome, DKC, Hoyeraal-Hreidarsson syndrome, bone marrow failure, congenital dyskeratosis, reticular skin hyperpigmentation, nail dystrophy, oral leukoplakia, pancytopenia, testicular atrophy Background: Dyskeratosis congenita (DKC), also known as Zinsser-Engman-Cole syndrome, is a rare, progressive bone marrow failure syndrome characterized by the triad of reticulated skin hyperpigmentation, nail dystrophy, and oral leukoplakia. Evidence exists for telomerase dysfunction, ribosome... Read More
December 28, 2006 at 1:51amNo please dont be sorry. Its a blessing in disguise. Trust me. I have no regrets what so ever. And yes prayers and duas r most needed. Jazakallah!
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So hard to find people who have someone in their life who has some form of diability.... in disabiled
Trying to get you all to share your feeling and problems and dilemmas and your good news and sad news. My son is 6 years old and trust me. I know how hard it is! Being single doesnt help! But the rewards are great and I look forward to another kick or tantrum from him! It's all part of him. Bless. Just thought I'd share that!
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Salam all. My son has this rare genetic disorder. Has anyone heard of it? I know that there's 50 known cases in the world. Trying to find the remainder 49! He also has global developmental delay and failure to thrive. That pic was taken on his 6 th birthday in November. Take care Ma Salama
January 6, 2007 at 12:18pmThanks Bless ya Tigerlass! That's the link I have in my journal. So difficult to find carers of Disabled kids or even disabled people on this website.January 4, 2007 at 6:53pmsalaam i founf=d the following ebsite useful http://www.emedicine.com/derm/topic111.htm let me know what you think xx
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This is not a spam attack, simply a method of advertising my friend's blog. It's a very sassy, sexy and real tell-all of the dating scene in Dubai! So check out -> www.single-in-dubai.blogspot.com I guarantee a laugh (at least) and some new perspective on dating in Dubai! Have fun!
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Salaam alaikum everyone, Majority of places will have Eid-Ul-Adha on Sunday December 31 2006. Times and locations are listed below: Saturday December 30 2006 CNE - Direct Energy Centre(Halls B & C) gtaeid.com masjidtoronto.org Salah 10am =================================== SATURDAY, DECEMBER 30TH, 2006 Islamic Forum of Canada 200 Advance Blvd, Brampton, ON (DAY OF ARAFAT IS FRIDAY, DECEMBER 29TH, 2006) TIME : 9:00 AM * PLEASE ARRIVE EARLY TO ESTABLISH THE S... Read More
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Okay This JE is for Ruby! we will keep track of Rubys last few weeks of pregnancy! The due date is 3rd week of jan but everyone take a guess! b/c you never know! Also guess if its a boy/girl... and how many lbs... the winner gets to name the child- LMAO - TOTALLY JOKING :P
February 1, 2007 at 8:42pmMashalah the mummy in question had a healthy baby boy i belive. i hope it was a relatively easy labour and that the baby makes his parents proud. anyyyywaayyyy Nomecapone i h...
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Salam, I want to know about NYC teaching fellow program for public high school. How is it to teach in nyc schools? to high school kids? plz let me know. Thanks!
January 24, 2007 at 9:21amHEY! did you get any feedback on the NYC teaching fellow program? if so, can you share? thanks
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Someone says, "I can't help feeding my family. I have to work so hard to earn a living." He can do without God, but not without food; he can do without Religion, but not without idols. Where is one who'll say, "If I eat bread without awareness of God, I will choke."
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So any one thinks Saban is a good pro coach and can make right personnel decisions. I personally think he is a remarkable college coach where he can mighty recruit and develop kids. The teams he built at LSU and players he recruited is nothing less than amazing. His personnel decisions so far in Miami have just been average at best, other than drafting Channing crowder, its been a real poor judgement. How he let Drew slip away and acquired a trashy, overrated, poor QB like culpepper is beyond my imaginat... Read More
January 4, 2007 at 3:16pmXubrent: Mad dog has been out sick all week but Francessa got into and said he blames Wayne Huzeinga. He actually made a lot of sense. He said why would you give a coach like Sa...January 4, 2007 at 12:23pmThis article from Dan Le Batard of the Miami Herald absolutely tears Saban a new one. OUCH. http://www.miami.com/mld/miamiherald/sports/columnists/dan_le_batard/16374957.htmJanuary 4, 2007 at 12:22pmIf sports radio in chicago is grilling Saban than you can just imagine whats it in Miami .. well it is just ugly.. you can listen to Dan Lebatard now on 790 the ticket website.....
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The Army Inside Man ******************* Every day, a war is fought in the innermost parts of your body unperceived by you. On the one side are viruses and bacteria that aim to intrude into your body and take it under control and on the other are the immunity cells that protect the body against these enemies. The enemies wait in an offensive state to make their way into the area they aim at and they head towards the target area at the first opportunity. However, the strong, organised and disciplined sold... Read More
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Non-English speaking immigrant now is fluent attorney Prosecutor who arrived in the U.S. 20 years ago speaking no English wins recognition for his eloquence. By LARRY WELBORN The Orange County Register "It's not even close," Deputy District Attorney Ebrahim Baytieh stressed in final arguments in the sanity phase of a murder case earlier this month. The defendant knew exactly what he was doing when he blasted his mother with a shotgun, Baytieh bellowed, and he should be declared sane. "It's not even c... Read More
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Another village...well welcome all :) Hows your day going?
December 29, 2006 at 3:41pmBtw, ootho aye soonay walo Eid aayi Eid aayi AID MABROUK TO ALL OF YOU. P: P: P:December 29, 2006 at 3:40pmFilzy, Hot? where? coz here it's bahut saardi :P Me for qurbani , i will kill my stalker. She is sending the same msg every time :* :* :*December 29, 2006 at 12:07pmWow...I didn't know...its definitely Breaking News. With this seriousness, I feel bad going back to the jokes...but in response to Brainy, so what...if someone is hot, they a...
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I know this movie isn't that new but I finally saw it and Loved it!!! I kept putting it off because I thought it would be a cheesy special affects movie, but I loved it. I know they ripped off the story from other American movies but still, it was very well put together and Hrithik did a great job. Actually this weekend I got to see a bunch of movies I otherwise woudln't have seen. Water Aap ke Khaatir Siskiyan (morbid movie but very different) Bluffmaster
December 28, 2006 at 10:08pmthe only good thing about krrrrrish was that h-rithik was hot!December 27, 2006 at 11:55pmi finally saw dor and the movie just blew me away...it was soo well done....u guys should watch it
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I am planning on going to Delhi during June and July and am looking to volunteer some time with an organization there. I am interested in human rights/development/advocacy work with organizations such as Amnesty Intl. Do any of you have suggestions or leads on other similar groups in Delhi? Any help would greatly be appreciated! Thanks and salaam, Ambreen
January 7, 2007 at 1:24pmTry the National Human Rights Commission http://nhrc.nic.in/ Or the Commonwealth Human Rights Initiative http://www.humanrightsinitiative.org
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I am planning on going to Delhi during June and July and am looking to volunteer some time with an organization there. I am interested in human rights/development/advocacy work with organizations such as Amnesty Intl. Do any of you have suggestions or leads on other similar groups in Delhi? Any help would greatly be appreciated! Thanks and salaam, Ambreen
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I am planning on going to Delhi during June and July and am looking to volunteer some time with an organization there. I am interested in human rights/development/advocacy work with organizations such as Amnesty Intl. Do any of you have suggestions or leads on other similar groups in Delhi? Any help would greatly be appreciated! Thanks and salaam, Ambreen
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daaG duniyaa ne diye zaKhm zamaane se mile ham ko ye tohafe tumhe.n dost banaane se mile ham tarasate hii taraste hii tarasate hii rahe vo falaane se falaane se falaane se mile Khud se mil jaate to chaahat kaa bharam rah jaataa kyaa mile aap jo logo.n ke milaane se mile kaise maane ke unhe.n bhuul gayaa tuu ai 'Kaif' un ke Khat aaj hame.n tere sarahaane se mile -----Kaif Bhopali ------
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Energy/environmental awareness: i had no idea simple things like unplugging ur cell charger can help in preventing global warming! check out this link! 'one by one, tonne by tonne we can help save the planet!' www.global-cool.com
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Energy/environmental awareness: i had no idea simple things like unplugging ur cell charger can help in preventing global warming! check out this link! 'one by one, tonne by tonne we can help save the planet!' www.global-cool.com
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Energy/environmental awareness: i had no idea simple things like unplugging ur cell charger can help in preventing global warming! check out this link! 'one by one, tonne by tonne we can help save the planet!' www.global-cool.com



