Village Journals
Resonate your identity with Naseeb journals. Express your opinions, share your thoughts, post your writings and connect with like minded people through the power of expression.
Resonate your identity with Naseeb journals. Express your opinions, share your thoughts, post your writings and connect with like minded people through the power of expression.
Dyskeratosis Congenita
Salam all. My son has this rare genetic disorder. Has anyone heard of it? I know that there's 50 known cases in the world. Trying to find the remainder 49! He also has global developmental delay and failure to thrive. That pic was taken on his 6 th birthday in November.
Take care
Ma Salama
Take care
Ma Salama
Comments on this journal
Bless ya Tigerlass!
That's the link I have in my journal.
So difficult to find carers of Disabled kids or even disabled people on this website.
i founf=d the following ebsite useful www.emedicine.com
let me know what you think
xx